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Updated: May 13, 2026

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
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Embedding Patient and Public Engagement in a Cancer Project: Protocol for a Qualitative Study.

Piotr Teodorowski1, Marcus Arana2, Daniel G Garza2

  • 1University of Stirling, Pathfoot Building, Stirling, FK9 4LA, United Kingdom, 44 1786 466362.

JMIR Research Protocols
|May 11, 2026
PubMed
Summary

This study introduces a novel approach where lived experience experts co-research qualitative studies. This method aims to enhance public engagement and ensure research relevance by involving experts throughout the study lifecycle.

Keywords:
PPIcancerpatient and public involvementpatient involvementpublic engagement

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Area of Science:

  • Qualitative Research Methods
  • Community-Based Participatory Research
  • Health Services Research

Background:

  • Patient and public engagement in research enhances study quality, relevance, and inclusivity.
  • Meaningful engagement requires careful planning and preparation.
  • Integrating lived experience experts as coresearchers is a key strategy for effective public involvement.

Purpose of the Study:

  • To present a public engagement approach for a qualitative study using lived experience experts as coresearchers.
  • To describe the process of involving experts from study design through dissemination.
  • To evaluate the meaningfulness of this co-researcher model.

Main Methods:

  • A community advisory board (CAB) of 4 lived experience experts served as coresearchers.
  • The CAB participated in monthly meetings covering all research stages.
  • Engagement was evaluated using reflective discussions and a public engagement framework.

Main Results:

  • The study is in its early stages (funding in 2025, recruitment in 2025).
  • No findings are available as the paper reports on the approach.
  • Full evaluation of the CAB activities is anticipated in mid-2026.

Conclusions:

  • This approach offers a new understanding of engaging lived experience experts in qualitative research.
  • It provides guidance for researchers planning realistic and inclusive public engagement activities.
  • The findings will inform genuine public involvement in future qualitative studies.