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Home Health Care Providers' Readiness to Care for Children and Youth With Complex Medical Conditions: A Scoping
Joanne Tay1, Joanne Ta1, Amanda Rilett1
1Faculty of Nursing, University of Windsor, Windsor, Ontario, Canada.
Insights
Home care provider readiness for children and youth with medical complexity (CYMC) is crucial for safety. Limited training, challenging home environments, and system gaps hinder readiness, impacting care quality and patient outcomes.
Area of Science:
- Pediatric Nursing
- Home Healthcare
- Medical Complexity
Background:
- Children and youth with medical complexity (CYMC) require specialized home care.
- Assessing and ensuring provider readiness is vital for safe and effective care delivery.
Purpose of the Study:
- To synthesize evidence on the conceptualization, influencing factors, and support strategies for home care provider readiness for CYMC.
- To identify gaps in current understanding and practice regarding provider readiness.
Main Methods:
- A comprehensive scoping review adhering to PRISMA-ScR and Joanna Briggs Institute guidelines.
- Systematic searches across multiple databases (MEDLINE, Scopus, CINAHL, PsycINFO, Cochrane, ProQuest) and grey literature.
- Inclusion of quantitative, qualitative, and mixed-methods studies examining provider readiness for CYMC (0-18 years) in home settings.
Main Results:
- Providers reported insufficient pediatric-specific education, mentorship, and supervision, relying heavily on experiential learning.
- Readiness is influenced by home conditions, isolation, role ambiguity, family dynamics, and equipment reliability.
- Lower provider readiness correlated with safety concerns, readmissions, family stress, and moral distress.
Conclusions:
- Provider readiness is a critical safety and quality indicator in pediatric home care.
- Readiness is shaped by clinical, relational, and systemic factors.
- Future research should focus on defining the construct, developing measurement tools, and testing integrated support strategies.
Abstract:
Aim To synthesise evidence on how home care providers' readiness to care for children and youth with medical complexity (CYMC) is conceptualised, what shapes it in practice and what approaches have been used to support or enhance readiness. Methods This scoping review was conducted in accordance with PRISMA-ScR and Joanna Briggs Institute guidelines, with the protocol registered on the Open Science Framework. MEDLINE, Scopus, CINAHL, PsycINFO, Cochrane databases and ProQuest (Nursing & Allied Health; Dissertations & Theses) were searched from 30th April 2025, with an update on 29th December 2025. Quantitative, qualitative, mixed-methods studies, reviews and relevant grey literature examining provider readiness to care for CYMC (0-18 years) at home were eligible. Two reviewers independently screened and charted data. Results A total of 19 studies were included following screening of 3530 records and 64 full-text reviews. Providers described limited paediatric-specific education, mentorship and supervision, variable training quality and reliance on experiential learning. Readiness was shaped by home conditions, isolation, unclear roles, family dynamics and equipment reliability. No tool measured readiness as a unified construct. Lower readiness was related to safety concerns, readmissions, family stress and provider moral distress. Conclusion Provider readiness appears to be a key safety and quality concern in paediatric home care, shaped by clinical, relational and system-level supports. Future work should clarify the construct, develop measures and test multicomponent strategies combining paediatric-specific education, mentorship, supported practice and service redesign.
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