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User Perspectives on Sharing Self-Generated Health Data
Michael Schön1, Mona Dür1,2
1Duervation GmbH, Krems/Donau, Austria.
Background:
Self-generated health data can support digital prevention and research, but their use depends on public willingness to share such data.
Objectives:
This study examined attitudes towards data sharing in the Austrian PreNUDGE project.
Methods:
Qualitative focus groups and individual interviews with four population groups were analysed using meaning condensation according to Kvale.
Results:
Preliminary findings show that acceptance depends less on incentives than on trust-related conditions such as transparency, security, and user control; economic data use was viewed critically.
Conclusion:
Designing trustworthy and user-centred data-sharing infrastructures is essential for participation.
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