Related Experiment Video

Updated: May 14, 2026

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
06:16

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting

Published on: June 6, 2020

Children with chronic complex conditions: Preferences for digital and in persons support and involvement in their own

Margaretha Jenholt Nolbris1,2, Stefan Nilsson1,2,3, Diana Swolin-Eide4,5

  • 1Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.

Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community
|May 13, 2026
PubMed

Insights

Children with complex chronic conditions (CCC) need personalized support and information. A person-centered approach, including digital and in-person care, enhances their participation and well-being.

Area of Science:

  • Pediatric Healthcare
  • Chronic Illness Management
  • Patient-Centered Care

Background:

  • Children with complex chronic conditions (CCC) face daily challenges impacting well-being.
  • A person-centered approach is crucial for tailored support, but preferences for digital vs. in-person care are unclear.

Purpose of the Study:

  • To explore how children with CCC experience digital and in-person support.
  • To understand their information needs and perceived participation in healthcare.

Main Methods:

  • Qualitative descriptive study involving individual interviews with 12 children (aged 10-17).
  • Data analyzed using manifest content analysis.

Main Results:

  • Two categories emerged: "Support and involvement in one's own healthcare" and "Receiving information in different ways."
  • Children with CCC desire personalized information and support, valuing both professional and peer interactions.

Conclusions:

  • A person-centered care model is essential for children with CCC.
  • This approach respects children's rights and promotes active engagement in their healthcare journey.

Keywords:
chronic illnesspediatric populations and experiencequalitative interviews

Related Concept Videos

Chronic Kidney Disease III: Interprofessional Care01:28

Chronic Kidney Disease III: Interprofessional Care

Chronic kidney disease (CKD) requires collaborative and comprehensive management. CKD progresses through stages and can lead to end-stage kidney disease (ESKD) if untreated. Interprofessional collaboration and patient education are crucial, enabling patients to manage their health and improve their quality of life.Diagnostic approach for chronic kidney diseaseThe diagnosis of CKD primarily focuses on the glomerular filtration rate (GFR), which assesses kidney function by measuring how well...
Methods of Documentation VI: Case Management Model01:15

Methods of Documentation VI: Case Management Model

The case management model is a multidisciplinary approach that involves healthcare professionals from diverse disciplines, such as physicians, nurses, therapists, social workers, and pharmacists, working collaboratively to address the various needs of patients. Each healthcare professional brings unique expertise and perspectives, contributing to a more comprehensive understanding of the patient's condition and tailoring treatment plans accordingly.
For example, a patient with a chronic illness...
Documentation in Long-Term and Home Healthcare Setting01:29

Documentation in Long-Term and Home Healthcare Setting

Documentation in long-term care facilities and home healthcare settings is crucial for ensuring continuous, coordinated, and comprehensive care for patients. Each setting has its specific documentation processes and tools:
Long-Term Care Facilities
Patient-centered Care01:13

Patient-centered Care

Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
Nursing Process for Patient and Caregiver Teaching I: Assessment and Diagnosis01:24

Nursing Process for Patient and Caregiver Teaching I: Assessment and Diagnosis

The nursing process provides a clinical decision-making framework for patients and families to establish and implement a personalized care plan. Since part of the nurse's duties is to teach patients, the steps of the nursing process are the most effective way to approach instruction. The nursing process and the teaching-learning process are inextricably linked.
It is critical to determine the patient's learning needs during the assessment. Determination of learning needs compounds data from the...
Chronic Kidney Disease IV: Nursing Management01:18

Chronic Kidney Disease IV: Nursing Management

Nursing management is essential for preventing complications, maintaining stability, and improving patients' quality of life in chronic kidney disease (CKD). By using a structured approach, nurses help slow CKD progression and support effective patient care​.1. Comprehensive patient assessmentEffective management begins with nurses reviewing the patient’s medical history, and identifying key risk factors like diabetes, hypertension, and nephrotoxic drug use. Nurses assess signs of fluid...