Analyzing readability and suitability of webpages related to genetic counseling and genetic testing

Patients who are referred for genetic counseling and/or genetic testing may conduct web searches to try to gather more information prior to their appointment. However, little is known about the reading level of such resources or the suitability of the information they provide. This study aims to determine the readability and suitability of top-ranked webpages after general searches about genetic counseling and if there is a difference in these metrics depending on which type of organization (i.e., government, non-profit) authored the webpage. Twenty webpages were identified using Google. Searches of the questions "What is a genetic counselor?", "What is genetic testing?", "Why do I need genetic testing?", and "What happens at a genetic counseling appointment?" were completed and the top 5 pages were taken from each. These webpages were then analyzed using the readability tools of Flesch-Kincaid (FK) and Standardized Measure of Gobbledygook (SMOG). Both FK and SMOG provide an assessment of readability based on grade level with the goal of this study to find resources under grade level 8. Additionally, the webpages were analyzed using the Suitability Assessment of Materials (SAM) on 6 categories. To complete the SAM analysis, two reviewers completed the tool for each webpage. Sponsor type was determined based on the primary goal of the group that supported or published the webpage. When comparing between questions, the average FK scores for the webpages were between 8th and 12th grade and the average SMOG scores were between 11th and 14th grade. Most webpages rated as adequate on the SAM scale. The results of this study highlight the continued need for evaluation of patient resources, especially those on the internet, to ensure they are meeting the needs of the rising number of individuals being referred to genetic services.