Giving Voice to Head and Neck Cancer Survivors: A Qualitative Investigation Into the Utility of Peer Support

Head and neck cancer (HNC) survivors often experience significant physical and psychological challenges posttreatment, including functional impairments and social isolation. Peer support programs, where survivors share experiences and offer mutual support, can improve emotional well-being, reduce isolation, and offer practical advice.

This qualitative study involved in-depth semistructured interviews with 25 HNC survivors recruited from a single health service. Participants provided insights into their experiences with their diagnosis and treatment, and preferences regarding peer support, including perceived benefits, challenges, and preferences for program design and delivery. Data were analyzed thematically, with key themes identified through coding of interview transcripts.

Participants highlighted several key themes: emotional and social support, information sharing, practical advice, and encouragement. The vast majority of participants (96%) believed peer support would have been beneficial during their treatment journey. However, some expressed concerns about potential negative effects, such as increased anxiety. Preferences were varied, with some preferring one-on-one sessions while others preferring group meetings. Most preferred in-person delivery, and most preferred their peers be matched for relevant demographic and treatment characteristics.

Peer support holds significant potential for improving the quality of life for HNC survivors, offering both emotional comfort and practical guidance. However, careful program design is needed to address potential drawbacks. Tailored, flexible peer support programs that account for individual preferences and needs may provide the most benefit for this population.