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Electronic Patient-Reported Outcome Measure and Decision Support Tool Option for Early Intervention Service Quality:
Vera C Kaelin1,2,3, Sabrin Rizk1,2, Yi-Fan Chen4
1Children's Participation in Environment Research Lab, University of Illinois Chicago, IL, USA.
Advances in Rehabilitation Science and Practice
|May 14, 2026
Summary
The Young Children's Participation in Environment Measure (YC-PEM) e-PRO tool showed promise for improving early intervention service quality. While not significantly different from usual care, it led to more participation-focused service plans.
Area of Science:
- Pediatrics
- Health Services Research
- Patient-Reported Outcomes
Background:
- Early intervention (EI) services aim to improve outcomes for young children.
- Enhancing EI service quality, particularly in service plan design, is crucial.
- Electronic patient-reported outcome (e-PRO) tools offer a promising avenue for quality improvement.
Purpose of the Study:
- To assess the preliminary effectiveness of the Young Children's Participation in Environment Measure (YC-PEM) e-PRO and a decision support tool.
- To evaluate their impact on EI service quality during service plan design.
Main Methods:
- A 2-arm pilot pragmatic trial with cluster randomization at the provider level.
- 76 caregivers enrolled; 57 completed pre- and post-intervention measures.
- Intervention group used YC-PEM e-PRO and decision support tool; control group received usual care.
Main Results:
- No significant differences in overall EI service quality indicators between groups.
- Intervention group families had higher rates of participation-focused service plans (69.2% vs. 51.4%).
- Most participation-focused plans met state-level quality criteria (84%).
Conclusions:
- The YC-PEM intervention demonstrated comparable performance to usual care for EI service quality indicators.
- It promoted high-quality, participation-focused service planning.
- Further testing of implementation factors and effectiveness in diverse contexts is warranted.
