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Exploring Satisfaction and Support Needs of Informal Home Caregivers Using Palliative Care Services: A Mixed-Methods

Jean Claude Twahirwa^1,2, Marg Fitch³, Godfrey Katende⁴

¹School of Nursing and Midwifery, College of Medicine and Health Sciences, University of Rwanda, Kigali, Rwanda.

Rwanda Journal of Medicine and Health Sciences

|May 14, 2026

Summary

Informal caregivers in Rwanda face significant strain due to inadequate training and support, impacting their well-being and satisfaction with palliative care services. Enhanced training and consistent aid are crucial for improving their experience.

Keywords:

Informal caregivers caregiver- satisfaction home-based care palliative care support needs

Related Experiment Videos

Area of Science:

Palliative Care
Global Health
Caregiver Support

Background:

Informal home-based caregivers are vital in Rwanda for patients with life-limiting illnesses.
Caregiving often leads to emotional, physical, and financial strain for these individuals.
There is limited research on caregiver satisfaction and unmet needs in Rwandan palliative care.

Purpose of the Study:

To explore the support needs of informal home-based caregivers in Rwanda.
To assess their satisfaction levels with existing palliative health services.

Main Methods:

A mixed-methods approach was used, combining qualitative (20 caregivers) and quantitative (161 caregivers) data.
Data collection occurred in the Nyamasheke and Rusizi districts of Rwanda.
Quantitative data were analyzed using descriptive statistics, and qualitative data underwent structured thematic analysis.

Main Results:

Caregivers reported significant emotional, physical, and financial strain.
Inadequate training and limited support contributed to burnout and dissatisfaction.
Caregivers expressed a need for improved training, financial assistance, and consistent medical support.

Conclusions:

Effective training and support systems are essential for caregiver satisfaction in palliative care.
Policy and programmatic reforms are necessary to enhance palliative care services for informal caregivers in Rwanda.