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Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
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Putting Me Into Memory Services (PMIMS study) protocol: co-exploring dementia and ethnicity using Photovoice.

Josephine Reynolds1, Aqsa Ghumra2, Kate Fryer3

  • 1University of Sheffield, Sheffield, UK josephine.reynolds@sheffield.ac.uk.

BJGP Open
|May 14, 2026
PubMed
Summary

Dementia disproportionately affects minority ethnic groups, who face barriers to timely diagnosis and care. This study explored cultural factors and developed community-led interventions to improve dementia care access for these populations.

Keywords:
DementiaHealth equityPrimary Health Care

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Area of Science:

  • Gerontology
  • Public Health
  • Sociology

Background:

  • Dementia prevalence is rising sharply in UK minority ethnic communities, at nearly six times the national average.
  • Research under-representation limits understanding of disparities, yet evidence indicates delayed diagnoses, crisis-level care, and reduced lifespan in these groups.
  • Existing knowledge gaps hinder effective dementia care strategies for racially minoritized populations.

Purpose of the Study:

  • To investigate cultural perspectives on aging and dementia within minority ethnic communities.
  • To identify barriers and enablers to healthcare access for family caregivers of individuals with memory problems.
  • To co-design community-led interventions aimed at improving dementia care access and uptake.

Main Methods:

  • A scoping review of UK literature on dementia care disparities.
  • Photovoice methodology involving focus groups with family caregivers from Chinese, Caribbean, and South Asian communities in Sheffield.
  • Co-design workshops with community leaders to develop intervention prototypes.

Main Results:

  • Significant inequities in dementia service access and uptake persist despite rising prevalence in minority ethnic communities.
  • Limited understanding exists regarding cultural influences on dementia care engagement and the impact of structural discrimination.
  • No formal interventions specifically addressing racial inequity in dementia care have been published.

Conclusions:

  • This research highlights the critical need to address cultural nuances and structural discrimination in dementia care for minority ethnic groups.
  • Findings will inform the development of culturally sensitive and accessible dementia support services.
  • Community-led approaches are essential for improving dementia care outcomes and reducing health inequities.