Understanding the unheard voices: A study on the experiences and perceptions of women using external breast...

Breast cancer is the most common cancer among women worldwide and an increasing concern in India, with incidence rates rising particularly among women under 50 years old. In India, delayed diagnosis and limited access to health care often lead to mastectomy, leaving many women to face complex physical, emotional, and social challenges afterward. External breast prostheses (EBPs) are a cost-effective option for post-mastectomy recovery, but there is limited research on the long-term experiences of Indian women using EBPs.

This qualitative study employed a phenomenological approach to explore the lived experiences of 35 women in Gujarat who had undergone mastectomy and used EBPs for at least 5 years. Participants were purposively chosen and interviewed using a semi-structured guide that addressed satisfaction, challenges, user needs, and suggestions for improvement. Thematic analysis was performed to identify key patterns and insights.

Most women reported high satisfaction with the adaptability, comfort, and positive impact of EBPs on self-confidence, especially when using silicone prostheses. However, challenges such as heat and perspiration, weight imbalance, durability concerns, limited product awareness, and affordability issues were noted. Participants suggested improvements including lighter, more breathable, and adjustable materials, longer warranties, enhanced counseling, and better financial access.

Findings reveal both the psychosocial benefits and practical challenges of long-term EBP use among Indian women, aligning with global literature and emphasizing the need for patient-centered rehabilitation solutions. Although EBPs improve confidence and daily function, enhancements in design, cost, and awareness are needed. Addressing these could significantly improve life quality and rehabilitation for postmastectomy women in India.