Supporting Survivor-Centered Care Through Digital Health Integration

Area of Science:

• Oncology
• Digital Health
• Health Services Research

Background:

• Childhood cancer survivors experience significant barriers in accessing recommended long-term follow-up care.
• Effective survivorship care plans (SCPs) are crucial for managing late effects and improving health outcomes.
• Digital tools offer potential solutions to enhance the generation, updating, storage, and sharing of SCPs.

Purpose of the Study:

• To assess awareness of features within the Passport for Care (PFC) and Cancer SurvivorLink (SurvivorLink) digital tools among survivorship clinics.
• To identify preferred strategies for disseminating information about these tools to various stakeholders.
• To inform the integration of PFC and SurvivorLink into routine clinical practice.

Main Methods:

• A survey was administered to 18 survivorship clinics utilizing PFC and/or SurvivorLink.
• The survey assessed awareness of core features and educational/clinician-focused resources.
• Respondents indicated preferred information dissemination strategies for different target audiences.

Main Results:

• Clinics demonstrated high awareness of the core functionalities of both PFC and SurvivorLink.
• Awareness of specific educational materials and clinician-focused resources was notably limited.
• Distinct dissemination strategies were preferred for clinics, clinicians, survivors, and community engagement.

Conclusions:

• While core features of digital survivorship tools are recognized, targeted education is needed to maximize their utility.
• Tailored dissemination strategies are essential for effective implementation across diverse stakeholder groups.
• Further efforts are required to ensure comprehensive awareness and utilization of resources supporting childhood cancer survivorship care.