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Updated: May 20, 2026
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Digital Home-Monitoring of Patients after Kidney Transplantation: The MACCS Platform
Published on: April 12, 2021
Recommendations for Living Kidney Donor Follow-Up in Canada
Sunita K Singh1,2, Allison Jaure3,4, Maia P Gill5
1Ajmera Transplant Centre, Toronto General Hospital, University Health Network, Toronto, Canada.
Clinical Transplantation
|May 19, 2026
Summary
A new national standard for living donor follow-up care in Canada was developed. This donor-centric model emphasizes long-term health, data generation, and collaboration between transplant centers and primary care providers.
Area of Science:
- Nephrology
- Transplantation
- Public Health
Background:
- Post-donation care for living organ donors in Canada lacks standardization.
- Variability in follow-up care can impact long-term donor health outcomes.
Purpose of the Study:
- To develop recommendations for a new national standard of care for living donor follow-up.
- To create a donor-centric model for long-term living donor health.
Main Methods:
- A virtual workshop convened living donors and healthcare providers to discuss a draft care model.
- A survey of 685 past donors informed the draft care model.
- Inductive, systematic coding of transcribed workshop deliberations facilitated data analysis.
Main Results:
- Four key themes emerged: donor-centric follow-up plans, data generation for outcomes, donor safeguarding, and strengthened partnerships.
- Recommended post-donation care is donor-centric, flexible, and collaborative, involving primary care and transplant programs.
- The proposed model includes a "safety net" for specialist care and donor consent for a national health outcomes registry.
Conclusions:
- Universal healthcare coverage is insufficient for ensuring long-term living donor health.
- A novel national model for long-term living donor follow-up, incorporating donor experiences and provider input, has been proposed and endorsed by all Canadian programs.
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