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Published on: April 12, 2021
Living, traveling, and dialysis: a qualitative analysis of patient experiences shared in an online forum
Emi Furukawa1, Tsuyoshi Okuhara1,2
1University Hospital Medical Information Network (UMIN) Center, The University of Tokyo Hospital, 7-3-1, Hongo, Bunkyo-ku, Tokyo 113-8655, Japan.
Background:
The ability to travel is one of the most valued aspects of quality of life among people undergoing maintenance hemodialysis. However, little is known about how people undergoing hemodialysis experience travel. This study aimed to qualitatively explore the significance of travel from this group's perspective by analyzing posts on an online forum, and to provide insights to support patient-centered dialysis care.
Methods:
We collected posts made between April 1, 2015, and March 31, 2025, on Japan's largest Q&A social media platform, covering hemodialysis and travel. Using reflexive thematic analysis, we inductively coded the content and generated themes and subthemes about the travel experiences of people undergoing hemodialysis.
Results:
In total, 150 threads with 744 posts were included in the analysis. We identified two overarching contexts: asking questions about living with hemodialysis, and seeking travel-related information. Travel experiences were mainly categorized as either once-in-a-lifetime or an extension of everyday life, with an intermediate theme of travel as a way to reclaim life and freedom. The feasibility of travel was determined by two key factors: the vulnerability of people undergoing hemodialysis and acceptance and cooperation from healthcare providers.
Conclusions:
For people undergoing hemodialysis, travel is a symbolic opportunity to reclaim autonomy and meaning in their lives. Clinicians should recognize travel as a critical element of quality of life and respect patients' aspirations and independence, while ensuring their safety through active collaboration and coordination among healthcare providers.
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