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Patient and Designer Collaboration in Cocreating Technical Innovations in a Hospital-Based Makerspace: Qualitative
Jiske van der Giessen1, Onno Helder2, Thijs van Houwelingen3
1Nursing Sciences, Program in Clinical Health Sciences, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands.
Background:
Hospital-based makerspaces have emerged as collaborative environments for technical innovation, where designers cocreate with health care professionals and patients to resolve specific problems experienced in practice. As end users, patients can offer unique insights that could drive the development of patient-centered health care services or research. However, cocreation with patients within a makerspace environment is still rare-representing a missed opportunity to use their insights to develop innovations that meet their needs. Patient-designer interactions are underaddressed in the literature, and a deeper understanding could enhance their effectiveness.
Objective:
The study aimed to explore the experiences of designers and patients (or their carers) cocreating in an academic hospital-based makerspace, using a bottom-up approach.
Methods:
A generic qualitative study was conducted using semistructured individual interviews based on the Sunnybrook team-based competencies and design thinking methodology. A heterogeneous sample of 12 participants was recruited from a makerspace in an academic hospital in the Netherlands, comprising 6 with a designer's perspective and 6 with a patient's perspective. Most participants were involved in collaborative pairs, representing both perspectives within the same innovation project. Data were analyzed thematically.
Results:
Four key themes emerged from the data: (1) dealing with the patient's situations, (2) integrating different perspectives, (3) feeling valuable and useful, and (4) dynamic interplay and engagement. Collaboration with patients in this hospital-based makerspace was perceived as valuable for innovation development, benefiting from diverse perspectives. However, the degree of patient involvement varied, influenced by factors such as the patient's health status, reachability, and interest in innovation development.
Conclusions:
This study highlights the complexity of developing technical innovations that involve hospitalized patients. It offers valuable insights into how both patients and designers generally viewed their collaboration in the makerspace positively. Practical recommendations for hospital-based makerspaces include respecting patient autonomy, involving patients early and consistently throughout all development phases, maintaining communication beyond the formal collaboration period, and actively seeking feedback.
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