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Related Concept Videos

Patient-centered Care01:13

Patient-centered Care

Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
Interdisciplinary Care: The Health Care Team-I01:21

Interdisciplinary Care: The Health Care Team-I

An interdisciplinary team includes many healthcare professionals working together and utilizing their skills, knowledge, and expertise to provide holistic and quality patient care.
Physicians
The physician's primary responsibility is to diagnose illness and direct the medical or surgical treatment of the condition. The authority to admit patients to a healthcare agency or institution and practice care within that setting is granted to physicians by the healthcare agency or institution itself.
Interdisciplinary Care: The Health Care Team-II01:18

Interdisciplinary Care: The Health Care Team-II

An interdisciplinary team includes many healthcare professionals working together and utilizing their skills, knowledge, and expertise to provide holistic and quality patient care. Here are a few more healthcare professionals.
Physical Therapist
A physical therapist (PT) aims to restore function or prevent additional impairment in a patient following an injury or disease. Massage, heat, cold, water, sonar waves, exercises, and electrical stimulation are some treatments used by PTs to treat...
Peripheral Artery Disease III: Interprofessional Care01:27

Peripheral Artery Disease III: Interprofessional Care

Peripheral Artery Disease (PAD) is characterized by narrowed arteries that diminish blood flow to the extremities. Effective management of PAD requires an interprofessional approach involving various healthcare professionals. The critical aspects of interprofessional care for PAD patients focus on risk factor modification, drug therapy, exercise therapy, nutrition therapy, critical limb ischemia care, and interventional radiology and surgical procedures.The primary treatment goal for PAD...
Methods of Documentation VI: Case Management Model01:15

Methods of Documentation VI: Case Management Model

The case management model is a multidisciplinary approach that involves healthcare professionals from diverse disciplines, such as physicians, nurses, therapists, social workers, and pharmacists, working collaboratively to address the various needs of patients. Each healthcare professional brings unique expertise and perspectives, contributing to a more comprehensive understanding of the patient's condition and tailoring treatment plans accordingly.
For example, a patient with a chronic illness...
Restorative Care01:19

Restorative Care

Restorative care is provided once a patient has been discharged from a healthcare facility and requires additional services. The additional services include home care, rehabilitation programs, and extended care. Restorative care centers help the patient regain their previous level of functioning or acquire a new level of functioning due to the incapacitating effects of a disease or a disability. It aims to assist patients in enhancing their quality of life by encouraging independence,...

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Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
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Published on: February 16, 2011

Improving ALS Clinic Care Through Experience-Based Co-Design: A Participatory Action Research Study.

Ambereen K Mehta1,2, Sonya U Steele1, Isha Shah3

  • 1Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.

Muscle & Nerve
|May 20, 2026
PubMed
Summary

Multidisciplinary clinics (MDCs) for amyotrophic lateral sclerosis (ALS) can improve care by focusing on communication and support resources. Collaborative design involving patients, care partners, and staff is key to patient-centered improvements in ALS care delivery.

Keywords:
amyotrophic lateral sclerosisexperience‐based co‐designmultidisciplinary careparticipatory researchpatient experiencequality improvement

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Area of Science:

  • Neurology
  • Patient Care
  • Health Services Research

Background:

  • Multidisciplinary clinics (MDCs) are standard for amyotrophic lateral sclerosis (ALS) care.
  • Understanding patient and care partner needs within MDCs is limited.
  • Stakeholder engagement potential for strengthening ALS MDC services is underexplored.

Purpose of the Study:

  • To explore experiences of people with ALS (pALS), care partners (cALS), and staff in an ALS MDC.
  • To identify care gaps within the current ALS MDC model.
  • To collaboratively develop strategies for improving ALS MDC care delivery.

Main Methods:

  • Employed a six-stage experience-based co-design (EBCD) methodology.
  • Conducted narrative interviews with pALS, cALS, and clinic staff.
  • Utilized reflexive thematic analysis and iterative working groups for strategy development.

Main Results:

  • Identified two key domains: communication/relationships and navigational/supportive resources.
  • Communication and relationships between care partners (cALS) and staff were prioritized.
  • Strategies included enhanced orientation, paced information delivery, and digital tools.

Conclusions:

  • Iterative, curated education is crucial for pALS and cALS throughout the disease.
  • Equitable stakeholder partnerships can lead to more patient-centered MDC care priorities.
  • Collaborative strategy development offers a distinct approach to enhancing ALS care delivery.