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MyLungHealth, a Patient-Facing Education Tool for Lung Cancer Screening: Qualitative User-Centered Design Study
Christian Andrew Balbin1, Leticia Stevens1, Rachel Dalrymple1
1Department of Biomedical Informatics, University of Utah, 421 Wakara Way #140, Salt Lake City, UT, 84108, United States, 1 (801) 581-4080.
JMIR Formative Research
|May 21, 2026
Summary
Patient feedback on the MyLungHealth tool improved lung cancer screening (LCS) education. Key changes included simplified risk communication and better integration into healthcare workflows for eligible individuals.
Area of Science:
- Oncology
- Health Informatics
- Patient Education
Background:
- Lung cancer screening (LCS) reduces mortality by 20% in high-risk individuals.
- Screening uptake remains low, below 20% of eligible patients.
- Shared decision-making and patient education tools are crucial for effective LCS implementation.
Purpose of the Study:
- To evaluate patient preferences and concerns regarding the MyLungHealth educational tool for LCS.
- To identify design considerations for personalized patient-facing LCS educational tools.
- To describe how qualitative findings informed iterative design modifications of MyLungHealth.
Main Methods:
- Qualitative research using focus groups (n=34) and interviews (n=18) with eligible individuals.
- Participants recruited from University of Utah Health and NYU Langone Health.
- Thematic analysis based on Braun and Clarke's principles.
Main Results:
- Patients struggled to interpret personalized risk information, impacting motivation.
- Desire for data autonomy, privacy, and clear, multi-format information was expressed.
- Expectations for seamless integration with clinical workflows and electronic health records were noted.
Conclusions:
- User-centered design is vital for effective LCS patient education tools.
- Simplified risk presentation and personalized delivery are essential.
- Balancing comprehensive risk communication with user accessibility is key for LCS tools.
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