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Empowering Citizen Participation in Digital Health: Requirements for Effective e-Participation Platforms.

Vera Weirauch1,2, Melissa Knoll2,3, Sven Meister1,2

  • 1Health Informatics, Faculty of Health, School of Medicine, Witten/Herdecke University, Germany.

Studies in Health Technology and Informatics
|May 23, 2026
PubMed
Summary

Digital health transformation offers e-Participation opportunities, but inclusive development of digital health interventions (DHI) needs better platforms. This study outlines principles for effective, equitable citizen engagement in digital health systems.

Keywords:
Digital HealthDigital Health InterventionsParticipatory research and designe-participation platforms

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Area of Science:

  • Health Informatics
  • Digital Health
  • Citizen Science

Background:

  • Digital transformation in healthcare enables e-Participation platforms.
  • Limited practical and inclusive citizen involvement in digital health interventions (DHI) development and evaluation.
  • Need for effective platforms to foster equitable participation.

Purpose of the Study:

  • Identify requirements for effective digital participation platforms in healthcare.
  • Provide evidence-based recommendations for policymakers and developers.
  • Contribute to more democratic and effective citizen participation in digital health.

Main Methods:

  • Multi-method study combining systematic platform analysis.
  • Interdisciplinary focus groups.
  • Expert interviews.

Main Results:

  • Key principles for effective platforms include low-threshold access, participatory features, inclusive design, and transparent processes.
  • Technological, methodological, and social factors are crucial for successful participation.
  • A framework bridging theory and practice for sustainable and equitable engagement.

Conclusions:

  • Effective digital participation platforms require careful consideration of access, features, design, and transparency.
  • Addressing technological, methodological, and social factors is essential for inclusive DHI development.
  • Recommendations support policymakers and developers in creating equitable digital health ecosystems.