Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Concept Videos

Kubler Ross's Stages of Dying01:21

Kubler Ross's Stages of Dying

Elisabeth Kübler-Ross significantly advanced psychology's understanding of the process of dying with her influential book, On Death and Dying (1969). She focused on studying terminally ill individuals and outlined five stages commonly experienced when coping with death: denial, anger, bargaining, depression, and acceptance.
In denial, individuals reject the reality of their condition, often thinking, "This isn't true; I feel fine," as a way to protect themselves from emotional distress. Anger...
Ethical Dilemmas II01:30

Ethical Dilemmas II

Resolving an ethical dilemma in healthcare involves a systematic approach that considers every aspect of the issue, respecting both the patient's needs and values and the healthcare professional's ethical obligations. Here are potential steps to resolve an ethical dilemma:
Ethical Issues01:27

Ethical Issues

Nurses are essential in patient care, upholding the ethical principles of their profession and effectively navigating ethical dilemmas. Neglecting ethical issues can lead to inadequate patient care, compromised therapeutic relationships, and moral distress among healthcare workers.
Ethical Concerns in Healthcare:
Continuing Care01:25

Continuing Care

Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
Documentation in Long-Term and Home Healthcare Setting01:29

Documentation in Long-Term and Home Healthcare Setting

Documentation in long-term care facilities and home healthcare settings is crucial for ensuring continuous, coordinated, and comprehensive care for patients. Each setting has its specific documentation processes and tools:
Long-Term Care Facilities
Models of Health Promotion and Illness Prevention II01:18

Models of Health Promotion and Illness Prevention II

The person's health status fluctuates continually, varying from being in good health to becoming ill and returning to being healthy. To understand the concept of illness prevention, there are two models. First, the health-illness continuum model is a graphic representation of an individual's wellness. It states that a person is considered healthy in the absence of physical disease and the presence of good emotional health.
The agent-host-environment model states that disease results from...

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

"Death Bouncers" and "Spiritual Guides": How End-of-Life Doulas Provide, Frame, and Navigate Spirituality and Spiritual Care.

Omega·2024
Same author

"COVID-19, I Hate You!": Framing Death and Dying in COVID-19 Online Memorials.

Omega·2022
Same author

"It's My Calling": Gendered Pathways to Funeral Work.

Omega·2019
See all related articles

Related Experiment Video

Updated: May 28, 2026

Setup and Execution of the Rapid Cycle Deliberate Practice Death Notification Curriculum
04:36

Setup and Execution of the Rapid Cycle Deliberate Practice Death Notification Curriculum

Published on: August 5, 2020

The FAME Model: Conceptualizing End-of-Life Doulas' Roles within Compassionate Communities.

Sarah Donley1, Sassy Pilkington1

  • 1Department of Sociology and Political Science, Jacksonville State University, Jacksonville, AL, USA.

Omega
|May 26, 2026
PubMed
Summary

End-of-life doulas (EOLDs) support dying individuals and families through practical, emotional, and existential care. The FAME model (facilitator, advocate, mediator, educator) clarifies their roles in community-based end-of-life care.

Keywords:
caregivingcircles of carecompassionate communitiesend-of-life careend-of-life doulasprofessionalization

Related Experiment Videos

Last Updated: May 28, 2026

Setup and Execution of the Rapid Cycle Deliberate Practice Death Notification Curriculum
04:36

Setup and Execution of the Rapid Cycle Deliberate Practice Death Notification Curriculum

Published on: August 5, 2020

Area of Science:

  • Sociology
  • Public Health
  • Thanatology

Background:

  • The U.S. population is aging, increasing demand for community-based end-of-life care.
  • Interest is growing in the role of end-of-life doulas (EOLDs) in supporting individuals, families, and communities during the dying process.

Purpose of the Study:

  • To identify and define the core roles of practicing end-of-life doulas.
  • To introduce the FAME model (Facilitator, Advocate, Mediator, Educator) to conceptualize doula practice.
  • To explore how doula work integrates with existing models of care and community support.

Main Methods:

  • Qualitative study involving 23 in-depth interviews with practicing end-of-life doulas.
  • Thematic analysis to identify recurring roles and functions within doula practice.
  • Conceptualization of the FAME model based on interview data.

Main Results:

  • The FAME model emerged, defining doulas as facilitators (practical, emotional, existential support), advocates (amplifying patient/family voices in healthcare), mediators (navigating interpersonal dynamics), and educators (demystifying death and options).
  • The FAME model delineates role boundaries and frames doula work functionally, offering clearer language for scope of practice.
  • Doula work was found to bridge micro-level caregiving, meso-level community engagement, and macro-level social change.

Conclusions:

  • End-of-life doulas play a multifaceted role in enhancing the dying experience through the FAME model.
  • The FAME model provides a functional framework for understanding and articulating the scope of practice for EOLDs.
  • Doulas contribute to compassionate communities by integrating individual care with broader social support systems.