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Young adults with PIMD Polyhandicap in pediatric settings a situation more complex than problematic

Marie-Christine Rousseau1,2, Sibylle Del-Duca3, Any Beltran3

  • 1EA 3279, CEReSS - Research Centre On Health Services and Quality of Life, Aix Marseille University, 27 Boulevard Jean-Moulin, 13385, Marseille, France. marie-christine.rousseau@aphp.fr.

Scientific Reports
|May 26, 2026
PubMed

Insights

Young adults with profound intellectual multiple disability (PIMD)/polyhandicap in pediatric care are younger and less dependent than those in adult care. Transition to adult services is often delayed but shows no clear impact on health outcomes.

Area of Science:

  • Neurology
  • Developmental Pediatrics
  • Public Health

Background:

  • Advances in medical care have increased survival for individuals with Profound Intellectual Multiple Disability (PIMD)/Polyhandicap into adulthood.
  • A significant portion of adults with PIMD/Polyhandicap remain in pediatric care facilities.

Purpose of the Study:

  • To compare health characteristics, care organization, and healthcare consumption between young adults with PIMD/Polyhandicap in pediatric versus adult care settings.
  • To evaluate differences in health profiles and care utilization based on the care management structure.

Main Methods:

  • Cross-sectional study utilizing data from the French Eval-PLH cohort.
  • Comparison of two groups of young adults (18-35 years) with PIMD/Polyhandicap: those in pediatric care versus those in adult care facilities.
  • Data collection included general health, care organization, and healthcare consumption.

Main Results:

  • Young adults in pediatric facilities were younger, had lower BMI, less severe dependency, and better health status compared to those in adult facilities.
  • Individuals in pediatric care received fewer specialist consultations (pulmonologist, gynecologist).
  • The transition from pediatric to adult care for PIMD/Polyhandicap individuals often occurs later.

Conclusions:

  • The profile of young adults with PIMD/Polyhandicap differs significantly based on whether they are managed in pediatric or adult care settings.
  • Delayed transition to adult care for PIMD/Polyhandicap patients does not appear to negatively impact health outcomes or care provision.
  • Further research is needed to optimize care transitions and ensure appropriate healthcare access for this population.

Keywords:
Care needsCare structuresPolyhandicapProfound intellectual multiple disabilitiesTransition

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