Parental decision-making in congenital hand and upper-limb differences: a national survey

Area of Science:

• Pediatric Surgery
• Orthopedics
• Congenital Anomalies

Background:

• Early surgical decisions are common for children with congenital hand and upper limb differences.
• Parental decision-making is a critical aspect of managing these conditions.

Purpose of the Study:

• To identify key factors influencing parental decisions regarding early surgical interventions for congenital hand and upper limb differences.
• To understand the informational and support needs of parents facing these choices.

Main Methods:

• A national survey was conducted among parents of children diagnosed with congenital hand and upper limb differences.
• Data collection focused on the primary influences and considerations during the decision-making process for surgery.

Main Results:

• Trust in the surgeon emerged as a paramount factor in parental decision-making.
• Seeking second opinions and engaging with peer support networks significantly influenced parental choices.
• Information accessibility and perceived surgical outcomes also played a role.

Conclusions:

• Parental decisions for early surgical interventions in congenital hand differences are multifactorial.
• Building trust, facilitating second opinions, and fostering peer support are essential for aiding parents in these critical choices.