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  3. Using Supported Decision-making To Promote Value-aligned Research Participation.
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  3. Using Supported Decision-making To Promote Value-aligned Research Participation.

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Using Supported Decision-Making to Promote Value-Aligned Research Participation.

Shen Pan1, Robert D Dinerstein2, David Wendler1

  • 1Department of Bioethics, https://ror.org/01cwqze88National Institutes of Health, United States.

The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics
|May 28, 2026

View abstract on PubMed

Summary
This summary is machine-generated.

Supported decision-making helps individuals with intellectual or cognitive disabilities make authentic choices in clinical research. Integrating dialectical support ensures decisions align with personal values, enhancing self-determination and research participation.

Keywords:
authenticitydialectical supportsupported decision-making

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Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
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Published on: June 6, 2020

Related Experiment Videos

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
14:43

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting

Published on: January 12, 2018

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
06:16

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting

Published on: June 6, 2020

Area of Science:

  • Bioethics
  • Disability Studies
  • Clinical Research Ethics

Background:

  • Individuals with intellectual or cognitive disabilities often require support for decision-making.
  • Ensuring value-aligned choices in clinical research participation is crucial for autonomy.

Purpose of the Study:

  • To explore supported decision-making (SDM) for value-aligned choices in clinical research for individuals with intellectual or cognitive disabilities.
  • To identify challenges in SDM for this population and propose solutions.

Main Methods:

  • Conceptual analysis of SDM principles.
  • Identification of specific challenges: integrating competing values and unpacking underspecified values.
  • Proposal of integrating dialectical support into SDM.

Main Results:

  • SDM enhances self-determination and increases the likelihood of value-aligned decisions.
  • Challenges arise when individuals must integrate multiple values or unpack vague ones.
  • Dialectical support offers a structured dialogue to explore and apply values.

Conclusions:

  • Supported decision-making, enhanced by dialectical support, can improve authentic decision-making for individuals with intellectual or cognitive disabilities in clinical research.
  • Addressing value-related challenges is key to promoting ethical and self-determined research participation.