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Advancing Equity, Diversity, Inclusion, and Accessibility in a Patient-Oriented Kidney Research Network: A Can-SOLVE
Keila Turino Miranda1,2, Jocelyn Jones2, Melanie D Talson2
1Department of Kinesiology and Physical Education, McGill University, Montreal, Quebec, Canada.
Canadian Journal of Kidney Health and Disease
|May 28, 2026
Summary
This study highlights the strengths of the Canadians Seeking Solutions and Innovations to Overcome Chronic Kidney Disease (Can-SOLVE CKD) network in equity, diversity, inclusion, and accessibility (EDIA), particularly in Indigenous and patient partner engagement. Future efforts will focus on increasing diversity and improving accommodations.
Area of Science:
- Health Services Research
- Patient-Oriented Research
- Health Equity
Background:
- Equity, diversity, inclusion, and accessibility (EDIA) principles are crucial for advancing research and improving health outcomes.
- Limited data exists to guide the implementation of EDIA within research networks.
- The Canadians Seeking Solutions and Innovations to Overcome Chronic Kidney Disease (Can-SOLVE CKD) network aimed to address this gap.
Purpose of the Study:
- To understand the application of EDIA principles within a kidney research network.
- To identify existing EDIA strengths and areas for improvement within the Can-SOLVE CKD network.
Main Methods:
- An internal network audit was conducted by the Can-SOLVE CKD EDIA working group.
- Seven virtual workshops engaged patient partners, research team members, and staff.
- Thematic analysis of 441 responses informed the EDIA mobilization plan.
Main Results:
- Key strengths identified include the inclusion of Indigenous voices, patient partner empowerment, and network-wide acceptance of EDIA.
- Future directions emphasize increasing diversity through outreach to under-represented communities.
- Improving accommodations and challenging biases in patient-oriented research were also highlighted.
Conclusions:
- Can-SOLVE CKD possesses significant EDIA strengths, rooted in patient partner inclusion and Indigenous leadership.
- Further action is needed to extend inclusivity across all demographics and disciplines.
- The network is prepared to implement strategies for enhanced EDIA, including grassroots outreach and diverse leadership hiring.
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