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In our own words: Patient-identified priorities for eczema care conversations
Jessica K Johnson1, Julian Rizza1, Charlene Miciano1
1National Eczema Association, Novato, California.
Atopic dermatitis, or eczema, impacts physical, mental, and social well-being beyond skin appearance. Patients desire personalized care that addresses the comprehensive burden of eczema for better outcomes.
Area of Science:
- Dermatology
- Patient-Reported Outcomes
- Health Psychology
Background:
- Atopic dermatitis (eczema) presents multifaceted challenges impacting physical, mental, and social well-being.
- Current clinical care often overlooks the comprehensive burden of eczema, focusing primarily on visible symptoms and treatment response.
- This can lead to a disconnect between patient experiences and healthcare provider perspectives, resulting in dissatisfaction.
Purpose of the Study:
- To explore the lived experiences of individuals with atopic dermatitis and identify patient-driven priorities for healthcare.
- To highlight the need for a more patient-centered approach in managing eczema.
- To address the discordance between patient needs and current care strategies.
Main Methods:
- Co-development of the study with an adult patient and a caregiver affected by eczema.
- Patient-centered qualitative process utilizing targeted conversations.
- Analysis of patient-driven priorities for healthcare conversations regarding the burden of atopic dermatitis.
Main Results:
- Lived experiences reveal a broader definition of eczema burden than typically addressed in clinical settings.
- Patients express a strong desire for personalized eczema care that acknowledges the comprehensive impact of the disease.
- Identified patient priorities emphasize the need for care aligned with their holistic well-being.
Conclusions:
- There is a significant need to bridge the gap between patient-reported experiences and clinical management of atopic dermatitis.
- Anchoring care conversations in patient priorities can foster optimal outcomes and improve satisfaction.
- Personalized, comprehensive care is crucial for effectively managing the multifaceted burden of eczema.
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