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Updated: May 31, 2026

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
14:43

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Published on: January 12, 2018

Community-engaged participatory methods for embedding equity in trial design.

Martina Svobodova1, Nina Jacob2,3, Catherine Lamont Robinson4

  • 1Centre for Trials Research, College of Biomedical & Life Sciences, Cardiff University, Neuadd Meirionnydd, Heath Park, Cardiff, CF14 4YS, UK. svobodovam@cardiff.ac.uk.

Trials
|May 29, 2026
PubMed
Summary
This summary is machine-generated.

Community-engaged methods, including arts and dialogue, enhance equity in clinical trials. Building trust and sustained partnerships are key for inclusive research design and addressing health inequities.

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Last Updated: May 31, 2026

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06:16

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Area of Science:

  • Public health research
  • Health equity
  • Clinical trial methodology

Background:

  • Randomised controlled trials (RCTs) often under-represent minority ethnic groups, socioeconomically disadvantaged individuals, and those facing language barriers or marginalization.
  • This under-representation exacerbates health inequities, despite existing UK guidance like the National Institute for Health and Care Research (NIHR) INCLUDE resources.
  • Practical methods for integrating equity into trial design remain limited.

Purpose of the Study:

  • To explore community-engaged, arts-based, and context-sensitive methodologies for enhancing equity in clinical trial design.
  • To identify practical approaches for embedding inclusivity from the outset of research.

Main Methods:

  • Two linked public involvement projects, Talking Trials and Let's Talk Research, utilized participatory methods.
  • These included arts-based activities, deliberative dialogue, and co-production, alongside thematic analysis and reflective discussions with community partners.

Main Results:

  • Community contributors highlighted the importance of trusted relationships, dedicated dialogue time, and support for understanding complex information.
  • Creative and dialogue-based approaches improved accessibility, reduced power imbalances, and fostered active participation.
  • Sustained structures like advisory groups and community connectors were vital for trust and ongoing engagement, with context-specific support being crucial for different forms of disadvantage.

Conclusions:

  • Community-engaged, arts-based, and context-sensitive methods can significantly improve equity in trial design.
  • Early involvement, investment in trusted partnerships, and sustained engagement structures are essential for creating relevant, acceptable, and inclusive trials.
  • The findings provide practical methodologies for trial teams aiming to embed equity from the beginning of the research process.