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Parental experiences transitioning neurological impaired young adults to adult services

Hilary Noonan1, Rajamanikandan Savarimalai2,3, Pauline O'Reilly2,3

  • 1University Hospital Limerick, Limerick, Ireland.

Health Care Transitions
|May 29, 2026
PubMed

Insights

Parents of young adults with severe neurological impairment (SNI) face a challenging healthcare transition. Improved planning and support are crucial for navigating the move from pediatric to adult services.

Area of Science:

  • Pediatric Healthcare
  • Neurology
  • Healthcare Transition

Background:

  • Healthcare systems are advancing, yet the transition from pediatric to adult care poses significant challenges.
  • Young adults with severe neurological impairment (SNI) have complex healthcare needs, making this transition particularly difficult.

Purpose of the Study:

  • To explore the experiences of parents managing the healthcare transition for young adults with SNI.
  • To understand the challenges faced during the move from pediatric to adult healthcare services in an acute hospital setting.

Main Methods:

  • An interpretative descriptive qualitative design was employed.
  • Eleven parents of young adults with SNI participated in the study.

Main Results:

  • The transition to adult healthcare services was identified as a major, complex shift.
  • Parents reported a lack of preparation and support, experiencing challenges and anxieties about the unknown.
  • The study offers in-depth insights into parental experiences during this critical transition phase.

Conclusions:

  • A more thoughtful and planned approach to healthcare transition is essential for young adults with SNI.
  • Enhanced support systems are needed to facilitate a smoother transition process.
Abstract

Keywords:
Children with complex health care needsChronic IllnessParent's/caregivers experiencesSevere neurological impairmentTransitioning to adult services

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