Reclaiming Life After Stroke: A Scoping Review of Qualitative Studies on Post-Rehabilitation Experiences

Stroke survivors often face complex challenges even after completing formal rehabilitation. This scoping review synthesizes qualitative research (2015-2025) on post-stroke experiences, focusing equally on emotional/psychological, physical, and social reintegration aspects. Thirteen studies (totaling over 250 stroke survivors across varied ages and regions) were included. The findings reveal that survivors commonly grapple with emotional distress (e.g., depression, anxiety, loss of identity), persistent physical impairments (e.g., fatigue, mobility limitations), and difficulties re-establishing social roles and relationships. Despite these challenges, many survivors gradually adapt through personal perseverance and support from family, peers, and health professionals. Gaps in post-discharge support were evident, with survivors often feeling abandoned once formal therapy ended. We present four tables summarizing study characteristics and key themes, and four figures illustrating trends and conceptual relationships. Overall, holistic, person-cantered approaches addressing psychological well being, long-term physical needs, and social reintegration are essential. This review highlights the importance of coordinated follow-up services and support systems to enhance quality of life and community participation for stroke survivors after rehabilitation.