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Longitudinal Research

Longitudinal Research

Sometimes we want to see how people change over time, as in studies of human development and lifespan. When we test the same group of individuals repeatedly over an extended period of time, we are conducting longitudinal research. Longitudinal research is a research design in which data-gathering is administered repeatedly over an extended period of time. For example, we may survey a group of individuals about their dietary habits at age 20, retest them a decade later at age 30, and then again...

Mouse Models of Cancer Study

Mouse Models of Cancer Study

Mice have long served as models for studying human biology and pathology because of their phylogenetic and physiological similarity with humans. They are also easy to maintain and breed in the laboratory, and hence, many inbred strains are now available for research. Studies on mice have contributed immeasurably to our understanding of cancer biology.
The development of transgenic, knockout, and knock-in mice has led to an exponential increase in their use as model organisms in research,...

Mouse Models of Cancer Study

Mouse Models of Cancer Study

Mice have long served as models for studying human biology and pathology because of their phylogenetic and physiological similarity with humans. They are also easy to maintain and breed in the laboratory, and hence, many inbred strains are now available for research. Studies on mice have contributed immeasurably to our understanding of cancer biology.
The development of transgenic, knockout, and knock-in mice has led to an exponential increase in their use as model organisms in research,...

Cancer Survival Analysis

Cancer Survival Analysis

Cancer survival analysis focuses on quantifying and interpreting the time from a key starting point, such as diagnosis or the initiation of treatment, to a specific endpoint, such as remission or death. This analysis provides critical insights into treatment effectiveness and factors that influence patient outcomes, helping to shape clinical decisions and guide prognostic evaluations. A cornerstone of oncology research, survival analysis tackles the challenges of skewed, non-normally...

Longitudinal Studies

Longitudinal Studies

Longitudinal studies are also widely used in other medical and social science fields. For instance, in cardiovascular research, they can monitor patients' health over decades to identify risk factors for heart disease, such as high cholesterol or smoking, and evaluate the long-term effectiveness of preventive measures. Similarly, in mental health studies, researchers might follow individuals from adolescence into adulthood to understand the development and progression of conditions like...

Cancer

Cancer

Cancers arise due to mutations in genes involved in the regulation of cell division, which leads to unrestricted cell proliferation. Modern science and medicine have made great strides in the understanding and treatment of cancer, including eradicating cancer in some patients. However, there is still no cure for cancer. This is largely due to the fact that cancer is a large group of many diseases.

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Related Experiment Videos

Navigating Long-Term Co-Creative Research With Young Adults Diagnosed With Cancer: A Qualitative Study.

Sarah Marklund¹, Rebecca Skog², Lars Sjödin²

¹Department of Psychology, Umeå University, Umeå, Sweden.

Health Expectations : an International Journal of Public Participation in Health Care and Health Policy

|June 3, 2026

Summary

Patient partners co-created the Fex-Can 2.0 intervention, enhancing its relevance and impact for cancer survivors. Their involvement led to concrete improvements in content and design, demonstrating the value of public collaboration in research.

Keywords:

cancer survivorship internet‐based intervention patient engagement patient involvement psychosocial intervention

Related Experiment Videos

Area of Science:

Patient and Public Involvement (PPI) in health research
Digital health interventions
Cancer survivorship care

Background:

Patient and public involvement is crucial for developing relevant cancer research interventions.
Few studies detail or evaluate the impact of such collaborations.
This study focused on refining an internet-delivered intervention for fertility and sexuality post-cancer (Fex-Can 2.0).

Purpose of the Study:

To evaluate a long-term, co-creative process involving patient partners to refine the Fex-Can 2.0 intervention.
To assess the impact of patient involvement on intervention design and evaluation planning.

Main Methods:

Qualitative study involving a shared working group with 10 young adult patient research partners (aged 26-39).
Seven working group meetings were held to revise intervention content and evaluation components.
Data from impact logs, field notes, and interviews (n=4) were analyzed using qualitative content analysis.

Main Results:

Three categories emerged: Collaborative working process (emphasizing transparency and feedback), Group atmosphere (highlighting safety and engagement), and Concrete impact (detailing revisions to intervention language, content, design, and recruitment materials).
Patient partners' input led to tangible improvements in the Fex-Can 2.0 intervention and its evaluation plan.

Conclusions:

Structured collaboration and iterative feedback fostered trust and inclusivity, enabling meaningful patient contributions.
Patient research partners' input resulted in concrete improvements to the Fex-Can 2.0 intervention.
This study supports PPI in intervention development and suggests future research on long-term involvement and recruitment strategies.