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Published on: September 30, 2020
Needs Assessment of Patients Requiring End-of-Life Care: A Community-based Cross-sectional Study
Kavi Nila David Retina1, Sonu Hangma Subba1, Manish Taywade1
1Department of Community Medicine and Family Medicine, All India Institute of Medical Sciences, Bhubaneswar, Odisha, India.
Indian Journal of Palliative Care
|June 3, 2026
Summary
This study found 4.3 individuals per 1,000 need end-of-life care in rural peri-urban areas. Significant unmet needs exist across all palliative care domains, requiring policy and primary care integration.
Area of Science:
- Public Health
- Geriatrics
- Palliative Care
Background:
- Comprehensive palliative care requires community needs assessment.
- End-of-life care planning is crucial for rural populations.
Purpose of the Study:
- To determine the prevalence of individuals needing end-of-life care in rural peri-urban areas.
- To evaluate the unmet needs within the four domains of palliative care for identified patients.
Main Methods:
- Data triangulation using health worker input, cancer registry data, and snowball sampling.
- Semi-structured interviews with identified patients assessing socio-demographics, disease details, and palliative care needs.
Main Results:
- Identified 225 patients requiring end-of-life care; 55.9% were over 60.
- Common conditions included cerebrovascular disease, heart disease, frailty, cancer, and chronic kidney disease.
- Prevalent issues were immobility, pain, breathlessness, and difficulties with daily activities; financial and future concerns were high.
Conclusions:
- End-of-life care needs were identified at 4.3 individuals/1,000 population.
- Unmet needs were present across all four palliative care domains.
- Policy implementation and integration into primary care are recommended to address these needs.
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