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Shared Experiences and Care Improvement Priorities for Multimorbidity Management: An Experience-Based Co-Design Study
Binu Koirala1, Chitchanok Benjasirisan2, Arum Lim1
1School of Nursing Johns Hopkins University Baltimore Maryland USA.
Learning Health Systems
|June 8, 2026
Summary
Managing multimorbidity requires improved communication, care coordination, emotional support, and education. A co-design approach involving patients, caregivers, and healthcare professionals identified key priorities for enhancing patient care and outcomes.
Area of Science:
- Healthcare Research
- Patient-Centered Care
- Chronic Disease Management
Background:
- Multimorbidity, the coexistence of multiple chronic conditions, presents a significant global healthcare challenge.
- Existing management strategies often overlook the lived experiences and priorities of patients, caregivers, and healthcare professionals.
- There is a need for a deeper understanding of stakeholder perspectives to improve care for individuals with multimorbidity.
Purpose of the Study:
- To explore the lived experiences of patients with multimorbidity, their family caregivers, and interprofessional healthcare workers.
- To identify shared priorities for improving the care of individuals with multimorbidity.
- To synthesize findings into a practical multimorbidity management toolkit.
Main Methods:
- An experience-based, six-stage, human-centered co-design study was conducted.
- Participants included patients (≥50 years) with heart failure and multimorbidity, family caregivers, and multidisciplinary healthcare professionals in Maryland, USA.
- Data collection involved in-depth interviews and co-design events, followed by thematic analysis and descriptive statistics.
Main Results:
- Interviews were conducted with 24 patients, 7 family caregivers, and 15 healthcare professionals.
- Four key areas for care improvement were identified: communication, care coordination/follow-up, mental/emotional support, and patient/caregiver health education.
- Co-design events and working groups facilitated consensus on these shared priorities.
Conclusions:
- Person-centered care models focusing on enhanced communication, coordination, education, and emotional support are crucial for effective multimorbidity management.
- The developed toolkit offers practical strategies to implement these improvements.
- Adopting these shared strategies can lead to better patient outcomes in multimorbidity care.
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