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French Translation and Psychometric Evaluation of the Standardized Outcomes in Nephrology Life Participation
Bénédicte Sautenet1,2,3, Mathis Brier4,5, Allison Jaure6,7
1Department of Nephrology and Clinical Immunology, Tours Hospital, Tours, France.
Introduction:
The Standardized Outcomes in Nephrology - Life Participation (SONG-LP) instrument is a short patient-reported outcome measure designed to evaluate life participation among kidney transplant recipients (KTRs). Developed by the Standardized Outcomes in Nephrology (SONG) initiative, this tool has been validated in English, but no French version has been psychometrically evaluated.
Methods:
We translated the SONG-LP into French following a forward-backward translation process with linguistic validation. Between March and June 2023, 136 adult KTRs from 2 French university hospitals (Nantes and Tours) completed the SONG-LP and PROMIS-29 questionnaires during a follow-up transplant visit. We assessed acceptability, reliability (internal consistency and test-retest reproducibility), and construct validity (structural validity and hypothesis testing based on a confirmatory framework).
Results:
The SONG-LP score was computable for 99% of respondents, with minimal missing or "not applicable" responses. Ceiling effects were observed, particularly for the "work" and "social" items. Internal consistency was good (Cronbach's α = 0.85) and test-retest reproducibility was acceptable (intraclass correlation coefficient ICC = 0.75). Results regarding construct validity were consistent with our a priori assumptions.
Conclusion:
The French version of the SONG-LP instrument is a valid and reliable tool for assessing life participation in KTRs.
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