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Holistic management of juvenile idiopathic arthritis across all ages: British Society for Rheumatology Guideline
Sandrine Compeyrot-Lacassagne1, Richard P Beesley2,3, Lisa Bray4
1Department of Paediatric Rheumatology and NIHR Biomedical Research Centre, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.
Insights
Juvenile idiopathic arthritis (JIA) affects children and young people, often requiring lifelong management. The British Society for Rheumatology (BSR) is developing new guidelines for JIA diagnosis, treatment, and monitoring.
Area of Science:
- Rheumatology
- Pediatric Rheumatology
- Clinical Guideline Development
Background:
- Juvenile idiopathic arthritis (JIA) is the most prevalent childhood-onset arthritis, frequently persisting into adulthood.
- JIA can manifest with joint inflammation, stiffness, pain, and extra-articular features like skin, entheseal, and ocular (uveitis) involvement.
- Effective management of JIA involves multidisciplinary teams and pharmacologic control of inflammation to prevent long-term damage and preserve function.
Purpose of the Study:
- To outline the development process for a new British Society for Rheumatology (BSR) guideline.
- The guideline aims to standardize the diagnosis, treatment, and monitoring of JIA across all age groups, from childhood through adulthood.
- Ensuring high-quality, consistent care for individuals with JIA throughout their healthcare journey, including transitions between pediatric and adult services.
Main Methods:
- The guideline development will adhere to the established BSR protocol for creating clinical guidelines.
- Incorporation of expert clinical input and the lived experiences of individuals with JIA.
- Systematic review of evidence and consensus-building among stakeholders.
Main Results:
- The BSR is actively developing a comprehensive guideline for JIA management.
- This guideline will provide evidence-based recommendations for healthcare professionals.
- It will address the continuum of care for JIA patients.
Conclusions:
- The forthcoming BSR guideline will enhance the quality of care for children, young people, and adults with JIA.
- Standardized approaches to diagnosis, treatment, and monitoring are crucial for optimal outcomes.
- Collaboration between experts and patient representatives ensures the guideline's relevance and applicability.
Abstract:
What does this mean for patients? Juvenile idiopathic arthritis (JIA) is the most common type of arthritis that starts before the age of 16 years. Many children and young people (CYP) continue to be affected by JIA and may need to be on treatment when they are adults. Most CYP with JIA have swollen, stiff and painful joints for at least 6 weeks. JIA can also affect other parts of the body. This includes the skin, the places where tendons join bones (called entheses) and sometimes internal organs. Some young people may also develop inflammation in their eyes, called uveitis. If this is not treated, it can affect eyesight and could lead to sight loss. People with JIA often need medicines to control inflammation. They are usually cared for by a team of healthcare professionals called a multidisciplinary team. This team may include doctors, nurses, pharmacists, physiotherapists, occupational therapists, podiatrists, psychologists and youth workers. They work together to help manage symptoms and prevent long-term damage. The British Society for Rheumatology (BSR) is the main organisation in the UK for healthcare professionals who care for people with JIA. BSR writes guidelines that help healthcare teams provide high-quality care. These guidelines are written with input from experts and people with lived experience. They help make sure that everyone receives good care wherever they live, including during the move from child to adult services. This article explains how BSR will develop a new guideline to diagnose, treat and monitor children, young people and adults with JIA. The guideline will follow the BSR protocol for creating clinical guidelines.
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