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Examining the Decision to Take a Dementia Risk Test: Considerations for Privacy in Screening At-Home
Alexandra M Reed1,2, Andrew Hooyman3, Nicole M Lee4
1School of Biological and Health Systems Engineering, Arizona State University, Tempe, Arizona, USA.
Dementia and Geriatric Cognitive Disorders
|June 8, 2026
Summary
Adults are willing to undergo dementia risk screening, but privacy concerns, especially for non-White individuals, are significant. Future screening methods should prioritize at-home use without involving medical providers or insurers.
Area of Science:
- Neurology
- Gerontology
- Public Health
Background:
- Emerging interventions target preclinical Alzheimer's disease and dementia.
- Need for early screening and monitoring methods is increasing.
Purpose of the Study:
- Assess adult willingness for dementia risk screening.
- Evaluate the impact of result privacy on screening decisions.
Main Methods:
- Survey of 527 adults nationwide via Amazon MTurk.
- Analysis using logistic regression and random forest models.
Main Results:
- Overall willingness to be screened for dementia risk was high.
- Older age correlated with increased willingness.
- Non-White participants showed significantly higher willingness for private results.
Conclusions:
- Willingness for dementia screening is present but influenced by privacy concerns.
- Non-White participants require greater data privacy assurances.
- Development of inclusive, affordable, at-home screening is recommended.
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