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[Medical and Welfare Support for Intractable Disease in Japan].

Tetsuo Komori¹

¹Tokyo Healthcare University.

Brain and Nerve = Shinkei Kenkyu No Shinpo

|June 11, 2026

Summary

Japan

Area of Science:

Public Health
Healthcare Policy
Medical Care Systems

Background:

Japan's support for intractable diseases started in 1972.
Current measures are guided by the 2015 Act on Medical Care for Patients with Intractable Diseases.
Designated research groups play a crucial role in advancing policy.

Purpose of the Study:

To provide an overview of key activities and achievements in intractable disease support in Japan.
To highlight contributions of research groups to policy development.
To examine various facets of care and support systems.

Main Methods:

Review of activities and achievements of designated research groups.
Focus on specific areas including healthcare delivery, rehabilitation, community support, care management, work-life balance, collaboration, home-visit nursing quality, disaster preparedness, and e-learning.

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Main Results:

Identified challenges and successes in healthcare delivery systems.
Examined rehabilitation strategies and community-level support roles.
Highlighted the importance of care management, inter-professional collaboration, and quality assurance in home-visit nursing.
Addressed work-life balance, disaster preparedness, and training initiatives.

Conclusions:

Comprehensive strategies are essential for effective intractable disease support.
Collaboration and integrated care systems are vital for improving patient outcomes.
Continuous development of resources and training is necessary to meet evolving needs.