Patient Perspectives, Unmet Needs and Dilemmas in Reproductive Decision-making for Genodermatoses: A Qualitative

Fauve C A P Van Veen1, Otte J M Borghouts2, Julia M K Clabbers2

  • 1Department of Dermatology, Maastricht UMC+ Centre of Expertise for Genodermatoses, University of Maastricht, Maastricht University Medical Centre+, Maastricht, Netherlands; GROW school for Oncology and Reproduction, Maastricht University, Maastricht, Netherlands. fauve.van.veen@mumc.nl.

Summary

Individuals with inherited skin diseases (genodermatoses) face complex reproductive decisions. Many prioritize avoiding passing on the condition, highlighting the need for genetic counseling.

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