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Involvement of persons with lived experience in mental health research: recommendations
K Kleine Schaars1,2,3, Allan H Young4,5, Ramona Moldovan6,7,8
1Outpatient Clinic Pharmacogenetics, Parnassia Psychiatric Institute, Amsterdam, the Netherlands.
Abstract:
Although the benefits of involvement of persons with lived experience in mental health research have been widely demonstrated, consistent implementation remains challenging. During the 36th ECNP congress in Barcelona, a session was hosted, discussing the collaboration between clinicians, researchers and the European patient organisation GAMIAN-Europe within the PSY-PGx Project. This short communication presents key themes emerging from this session and presents recommendations to support involvement of persons with lived experience in mental health research. Within the PSY-PGx project, persons with lived experience were involved from early on, which has contributed to active patient participation throughout the project. The recommendations may guide future research projects in optimizing patient involvement.
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