Three Decades of Health Care Transition in Rheumatology: Progress, Challenges, and Future Directions

Sarah D Bayefsky1,2, Joyce C Chang3

  • 1Hackensack Meridian School of Medicine, Nutley, New Jersey.

Insights

Pediatric rheumatology patients need better health care transition strategies to manage chronic conditions into adulthood. This review explores transition needs, interventions, and future directions for adolescents and young adults with rheumatic diseases.

Area of Science:

  • Pediatric Rheumatology
  • Adolescent Health
  • Healthcare Transition

Background:

  • Pediatric rheumatology advances have increased survival, leading to more young adults needing lifelong care.
  • Effective strategies are crucial for adolescents and young adults (AYA) to manage rheumatic diseases independently.
  • Transitioning from pediatric to adult healthcare models presents unique challenges for AYA with rheumatic diseases.

Purpose of the Study:

  • To provide a historical overview of healthcare transition in rheumatology.
  • To review outcomes and needs of AYA with pediatric-onset rheumatic diseases during transition.
  • To describe interventions aimed at improving healthcare transition for this population.

Main Methods:

  • Narrative literature review.
  • Analysis of seminal literature on healthcare transition outcomes and needs.
  • Synthesis of interventions for AYA with pediatric rheumatic diseases.

Main Results:

  • The review highlights the growing need for systematic approaches to healthcare transition.
  • Identified transition-related needs and outcomes for AYA with pediatric rheumatic diseases.
  • Described various interventions designed to support AYA during health care transition.

Conclusions:

  • Effective healthcare transition is critical for AYA with pediatric rheumatic diseases to achieve long-term health management.
  • Further research is needed to address knowledge gaps and optimize transition processes.
  • Developing and implementing targeted interventions can improve outcomes for AYA navigating adult healthcare systems.

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