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Updated: Jun 17, 2026

Digital Home-Monitoring of Patients after Kidney Transplantation: The MACCS Platform

Digital Home-Monitoring of Patients after Kidney Transplantation: The MACCS Platform

Published on: April 12, 2021

Designing Emotion-Integrated Visualizations for Kidney Function Self-Management: User-Centered Design Study With

Chelsea Ng¹, Julia C Dunbar², Lily Jeffs²

¹School of Medicine, University of Washington, Seattle, WA, United States.

Journal of Medical Internet Research

|June 15, 2026

Summary

A new kidney bean visualization helps youth kidney transplant recipients and caregivers understand kidney function (creatinine) results. This visual analogy connects lab values with emotions, improving self-management and care engagement.

Keywords:

adolescents caregivers digital health information visualization kidney transplant self-management user-centered design young adult

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The Dyspepsia Educational Tool As a Novel Aid in Dyspepsia Management

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Published on: June 29, 2019

Area of Science:

Health Informatics
Patient Education
Pediatric Nephrology

Background:

Youth kidney transplant recipients and caregivers struggle to interpret complex health data like creatinine levels.
Effective self-management requires understanding clinical information, which is often inaccessible.
Visual analogies can simplify abstract data, aiding comprehension and engagement.

Purpose of the Study:

To design and evaluate a novel visualization for youth kidney transplant recipients and caregivers.
To improve understanding of kidney function information for enhanced self-management.
To make complex clinical data more actionable and accessible.

Main Methods:

Two studies were conducted with youth kidney transplant recipients and caregivers.
Study 1 identified key visualization elements through participant drawings and interviews.
Study 2 evaluated a personalized 'kidney bean' visual using qualitative content and thematic analysis.

Main Results:

Participants found creatinine results difficult to understand, often using emotions to describe kidney function.
The 'kidney bean' visual analogy incorporated emotions and colors linked to creatinine levels.
The visualization validated emotions, facilitated reflection on health status, and motivated healthy habits.

Conclusions:

Kidney function values are emotionally significant for patients and families, not just clinical data.
Visualizations that incorporate emotional complexity can enhance health information understanding.
This approach supports self-reflection and improves self-management for youth kidney transplant recipients.