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  3. Pathways For First Nations Health Data Sovereignty: Creating Capacity Through Governance.
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  3. Pathways For First Nations Health Data Sovereignty: Creating Capacity Through Governance.

Related Experiment Video

Establishment of a Clinic-based Biorepository
07:50

Establishment of a Clinic-based Biorepository

Published on: May 29, 2017

Pathways for First Nations Health Data Sovereignty: Creating Capacity Through Governance.

Courtney Brianne Defriend1, Payal Batra2

  • 1Faculty of Health Sciences, Simon Fraser University, Burnaby, British Columbia, Canada.

Healthcare Management Forum
|June 17, 2026

View abstract on PubMed

Summary
This summary is machine-generated.

First Nations Health Data Sovereignty requires clear governance and resources to embed Nation-based control in health data operations. This research outlines principles for self-determination, moving away from colonial frameworks.

Related Experiment Videos

Establishment of a Clinic-based Biorepository
07:50

Establishment of a Clinic-based Biorepository

Published on: May 29, 2017

Area of Science:

  • Indigenous Health
  • Health Data Governance
  • Public Health Policy

Background:

  • Canadian health reports perpetuate systemic racism against First Nations.
  • Acknowledging First Nations' rights to their data is increasing, but operationalization remains unclear.
  • First Nations Health Data Sovereignty is a complex process needing governance, structure, and resources.

Purpose of the Study:

  • To articulate key principles for First Nations Health Data Sovereignty.
  • To equip policy and operations within Canadian health data systems.
  • To shift First Nations health data from western accountability to Nation-based self-determination.

Main Methods:

  • Research undertaken by the First Nations Health Authority in British Columbia.
  • Work conducted within established governance pathways assigned by First Nations Chiefs and leadership.
  • Focus on articulating principles for health data systems.

    • Main Results:

    • Identified key principles to guide First Nations Health Data Sovereignty.
    • Principles aim to reorient health data practices toward self-governance.
    • Research supports embedding Nation-based sovereignty in daily health data operations.

    Conclusions:

    • Meaningful embedding of First Nations Health Data Sovereignty requires clear governance, structures, and sustained resources.
    • Principles developed can facilitate a transition toward Nation-based self-determination in health data.
    • Addressing systemic racism in health data is crucial for Indigenous self-governance.