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Bridging the Gap: Implementing Race-Conscious Clinical Guidance in Pediatrics
Robert H Rosen1,2, Joseph L Wright3,4, Courtney A Gilliam5
1Ronald O. Perelman Department of Emergency Medicine, New York University Grossman School of Medicine, New York University Langone Health, New York, New York.
Insights
Pediatric race-based medicine is being replaced by race-conscious medicine, which uses neutral tools to address health disparities. Progress is being made, but barriers remain in implementation across healthcare systems and education.
Area of Science:
- Pediatric Health Equity
- Medical Ethics
- Health Disparities Research
Background:
- Traditional pediatric clinical guidelines often use race as a proxy for socioeconomic status and genetic ancestry, a practice termed 'race-based medicine'.
- The American Academy of Pediatrics advocates for eliminating race-based medicine in favor of 'race-conscious medicine'.
- Race-conscious medicine prioritizes race-neutral tools and addresses systemic health barriers causing racial disparities.
Purpose of the Study:
- To evaluate recent advancements in implementing race-conscious medicine within pediatrics.
- To identify persistent obstacles hindering the adoption of race-conscious medical practices.
- To explore strategies for transitioning from race-based to race-conscious approaches in pediatric care.
Main Methods:
- Reviewing the contributions of medical societies and researchers in developing race-conscious alternatives.
- Analyzing the implementation of race-conscious guidance by healthcare organizations, considering various facilitating and impeding factors.
- Examining the role of medical education bodies in integrating these principles.
- Assessing the influence of third-party platforms, device manufacturers, policy, and patient engagement.
Main Results:
- While race-conscious alternatives are emerging, many pediatric tools still incorporate race, potentially undermining equity.
- Implementation varies across healthcare organizations due to organizational, cultural, technical, and financial challenges.
- Medical education, third-party platforms, policy, and patient engagement are critical factors influencing progress.
Conclusions:
- Transitioning to race-conscious medicine in pediatrics requires a multi-faceted approach involving all stakeholders.
- Addressing structural barriers and promoting equitable tools are essential for reducing racial health disparities.
- Continued efforts are needed to integrate race-conscious principles throughout medical practice, education, and policy.
Abstract:
Pediatric clinical guidelines and algorithms have frequently included race as a risk factor to be considered in clinical decision-making. This practice, commonly known as "race-based medicine" or "race correction," substitutes race as a flawed proxy for socioeconomic status and genetic ancestry. The American Academy of Pediatrics has called for the elimination of race-based medicine and endorsed "race-conscious medicine" as a preferable alternative. Race-conscious medicine embraces race-neutral clinical tools and supports efforts to tackle the structural barriers to health that cause racial disparities. We aimed to assess recent progress and identify ongoing barriers in the implementation of race-conscious medicine in pediatrics. First, we review the role of medical societies and the research community in generating race-conscious alternatives to race correction, while noting that many pediatric tools continue to include race in ways that may negatively impact equity. Second, we discuss the role of health care organizations in implementing race-conscious guidance locally, drawing upon specific local and regional efforts to reveal organizational, cultural, technical, and financial factors that may facilitate or impede success. Third, we identify medical education governing bodies as essential in integrating the principles of race-conscious medicine into every stage of medical education. Fourth, we highlight the need for third-party clinical algorithm platforms and biomedical device manufacturers to provide access to race-conscious tools through their products. Finally, we address the role of the policy and regulatory landscape in accelerating or slowing the rate of progress, and the importance of patient engagement and redress of historical harms.
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