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Caring for Pediatric Clients With Arthrogryposis Multiplex Congenita: The Development of an Occupational Therapy
Amy Sitabkhan1,2, April Cowan1, Amy Boyd1
1The University of Texas Medical Branch, Galveston, Texas, USA.
Abstract:
Occupational therapy practitioners (OTPs) are vital members of the multidisciplinary team involved in caring for pediatric clients diagnosed with arthrogryposis multiplex congenita (AMC). However, a shortage of educational resources on AMC has led to gaps in knowledge and OTPs feeling inadequately prepared to provide comprehensive care. A 4-h continuing education (CE) course on caring for pediatric clients with AMC was designed using evidence-based literature and structured using the person-environment-occupation model. The occupation-based model guided learners to understand how therapy can intervene to improve occupational performance. The course was presented at the Texas Occupational Therapy Association 2024 Conference. Ten learners completed a pre- and postcourse examination, pre- and postcourse self-assessment, and course evaluation. Results indicated significant changes (p < 0.001) in knowledge acquisition, awareness, and preparedness to care for pediatric clients with AMC. Learners expressed greater clinical reasoning following the completion of clinical vignettes and hands-on activities. Overall, learners found the course to be well-developed. The development and implementation of the CE course led to significant changes in learners' awareness and preparedness to treat pediatric clients with AMC. OTPs should utilize advanced training CE courses based on learning theories and hands-on training opportunities to ensure safe and appropriate care. Future research should investigate longitudinal changes in learning and the impact of course design on learning.
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