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Traumatic Brain Injury l: Introduction01:28

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DefinitionTraumatic brain injury, or TBI, is a disturbance of normal brain function induced by an external mechanical force, such as a direct blow to the head or a penetrating injury. It can affect both brain structure and function, producing a wide range of clinical outcomes. TBI is a heterogeneous condition, meaning its effects may differ based on the type, location, and severity of the injury.Basis of ClassificationTBI is classified based on severity, injury mechanism, or pathophysiology. In...
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Improving Access to Traumatic Brain Injury Care Through Learning Health Systems Change: Community-Based Participatory

Jolie N Haun1, Risa Nakase-Richardson, Megan Moore

  • 1Author Affiliations: James A. Haley Veterans' Hospital, Tampa, FL (Haun, Nakase-Richardson, Gilmore, Ingram, Ryan, Decker and Campbell-Montalvo); University of South Florida, Tampa, FL (Nakase-Richardson, Gilmore, Ryan, Decker, and Campbell-Montalvo); Tampa VA Research and Education Foundation, Tampa, FL (Nakase-Richardson, Moore, Gilmore, Ingram, Ryan, Decker, and Coulter); Lived Experience Partner, FL (Coulter); University of Utah, Salt Lake City, UT (Haun); and University of Washington, Seattle, WA (Moore).

The Journal of Head Trauma Rehabilitation
|June 18, 2026
PubMed
Summary
This summary is machine-generated.

This study explores community-based participatory research (CBPR) and Human-Centered Design (HCD) to improve healthcare access for individuals with traumatic brain injury (TBI). Findings offer practical recommendations for strengthening community partnerships in TBI care.

Keywords:
brain injuriescommunity-based participatory research (CBPR)engagementhuman-centered design (HCD)traumaticveterans

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Area of Science:

  • Physical Medicine and Rehabilitation
  • Health Services Research
  • Community-Based Participatory Research

Background:

  • Calls for methodological diversity in physical medicine and rehabilitation highlight the need for approaches like Community-Based Participatory Research (CBPR).
  • Traumatic Brain Injury (TBI) presents complex challenges in accessing and engaging with healthcare services, particularly for veterans and service members.
  • Integrating Human-Centered Design (HCD) with CBPR can enhance the effectiveness of interventions for TBI care.

Purpose of the Study:

  • To report on the application of CBPR and HCD methods in a Department of Defense-funded project aimed at improving TBI care access.
  • To review the utilization of CBPR and HCD in engaging diverse stakeholders, including patients, clinicians, and policymakers.
  • To provide practical recommendations for implementing CBPR and HCD in TBI-related health initiatives.

Main Methods:

  • Community-Based Participatory Research (CBPR) principles were employed to foster collaboration with community partners.
  • Human-Centered Design (HCD) methodologies were adapted and utilized for engaging stakeholders with lived experiences of TBI.
  • A multidisciplinary approach was adopted within a Department of Defense-funded program focused on TBI care access.

Main Results:

  • Exemplar adaptive HCD activities were developed to elicit and understand diverse community perspectives.
  • Key practices were identified that effectively foster both HCD and CBPR methodologies.
  • The study demonstrated strengthened community partnerships and authentic engagement through a tailored approach for individuals with TBI lived experience.

Conclusions:

  • CBPR and HCD are valuable frameworks for improving healthcare access and engagement for individuals with TBI.
  • Adaptive HCD activities and tailored engagement strategies are crucial for addressing the complexities of TBI care.
  • Fostering authentic community partnerships is essential for the successful implementation of TBI health initiatives.