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  1. Home
  2. Digital Intervention For Electronic Patient-reported Outcomes In Advanced Cancer: Mixed Methods Study.
  1. Home
  2. Digital Intervention For Electronic Patient-reported Outcomes In Advanced Cancer: Mixed Methods Study.

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Published on: August 1, 2019

Digital Intervention for Electronic Patient-Reported Outcomes in Advanced Cancer: Mixed Methods Study.

Christina Sauer1, Simeon Sauer2, Elena Sophia Doll3

  • 1University Cancer Center Frankfurt (UCT), University Hospital Frankfurt, Goethe University, Theodor-Stern-Kai 7, Frankfurt, Hesse, 60590, Germany, 49 69-6301-83787, 49 69-6301-83788.

JMIR Cancer
|June 18, 2026

View abstract on PubMed

Summary
This summary is machine-generated.

This pilot study found that the SOFIA digital health app was feasible and well-accepted by cancer patients. Key features for future digital interventions include intuitive design and physician engagement for improved patient outcomes.

Keywords:
cancerdigital interventioneHealthePROelectronic patient-reported outcomeimmune-checkpoint inhibitionimmunotherapy

Related Experiment Videos

E-Patient Counseling Trial (E-PACO): Computer Based Education versus Nurse Counseling for Patients to Prepare for Colonoscopy
06:28

E-Patient Counseling Trial (E-PACO): Computer Based Education versus Nurse Counseling for Patients to Prepare for Colonoscopy

Published on: August 1, 2019

Area of Science:

  • Digital health interventions in oncology
  • Patient-reported outcomes
  • Cancer care technology

Background:

  • Digital health tools are increasingly used in cancer care to manage symptoms and distress.
  • The SOFIA app, featuring electronic patient-reported outcome (ePRO) assessment and coaching, was tested in a pilot randomized controlled trial.
  • The app demonstrated good feasibility and high acceptability in routine clinical settings.

Purpose of the Study:

  • To evaluate user experiences and behavior with the SOFIA digital health app.
  • To gather insights for refining digital health interventions for cancer patients.
  • To improve patient needs, preferences, and engagement with digital health tools.

Main Methods:

  • A mixed methods design combining qualitative interviews and quantitative app usage analysis.
  • Semistructured interviews were conducted with patients at 6 and 12 weeks.
  • Qualitative data were analyzed using content analysis; quantitative data were analyzed using Python and Pandas.

Main Results:

  • Qualitative feedback highlighted ePRO benefits (empowerment, communication) and coaching tool advantages (information, design).
  • Criticism included inflexible design and insufficient physician use.
  • Quantitative data showed 50% read articles, 87.5% started journeys, and 46.9% completed exercises.

Conclusions:

  • Digital interventions for cancer patients should prioritize intuitive design, actionable ePRO insights, and physician engagement.
  • Therapy-specific content is crucial for increasing acceptance and clinical benefit.
  • Findings inform the development of more effective digital health tools for oncology care.