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Published on: January 22, 2018
From research method to community resource: Co-developing a body mapping toolkit for peer support with Long Covid
Maaret Jokela-Pansini1, Oonagh Cousins2, Jo Dainow3
1School of Geography and the Environment, University of Oxford, Oxford, United Kingdom.
This study developed a Body Mapping Toolkit for Long Covid patients, co-created with patient support groups. Online workshops using this toolkit offer a safe, creative space for patients to share experiences and foster community support.
Area of Science:
- Medical Humanities
- Medical Anthropology
- Health Geography
Background:
- Long Covid presents complex, embodied experiences influenced by social, cultural, and economic factors.
- Existing research often lacks holistic perspectives on Long Covid illness narratives.
- Patient-led organizations are crucial for understanding and addressing patient needs.
Purpose of the Study:
- To develop and evaluate a Body Mapping Toolkit for Long Covid patients.
- To explore the utility of body mapping as a participatory arts-based research method.
- To investigate the potential of body mapping for Long Covid peer support.
Main Methods:
- Co-creation of the Body Mapping Toolkit with Long Covid Support.
- Conducting three online body mapping workshops (13 participants).
- Two follow-up feedback workshops and a feedback survey in 2024.
Main Results:
- Online body mapping workshops provide a safe, creative space for processing Long Covid experiences.
- The toolkit facilitates accessible and flexible discussion of challenging symptoms.
- Body mapping fosters a holistic understanding of illness shaped by personal contexts.
Conclusions:
- Body mapping is a valuable tool for centering patient narratives in Long Covid research.
- Co-production with patient organizations enhances the relevance and impact of health resources.
- Creative methods can serve dual roles in research and community-based peer support.
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