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Sussex Integrated Dataset (SID) Data Resource Profile.

Elizabeth Ford1, Jon Elsom2, Paul Molyneux3

  • 1Department of Primary Care and Public Health, Brighton and Sussex Medical School, Watson Building, Village Way, Falmer, Brighton, BN1 9PH.

International Journal of Population Data Science
|June 22, 2026
PubMed
Summary
This summary is machine-generated.

The Sussex Integrated Dataset (SID) links National Health Service (NHS) and social care records for 1.7 million patients in Southeast England. This valuable health data resource is now available for research and innovation.

Keywords:
health datalinked datapopulation health managementpublic healthroutinely collected dataservice evaluation

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Area of Science:

  • Health Informatics
  • Public Health Data Resources
  • Integrated Health and Social Care Data

Background:

  • The Sussex Integrated Dataset (SID) comprises linked National Health Service (NHS) and adult social care data for approximately 1.7 million patients in coastal Southeast England.
  • The region's population is characterized by a higher proportion of elderly individuals, significant deprivation disparities, a large LGBTQ+ community, and a substantial HIV cohort.
  • Established in 2019, SID integrates data from all NHS providers and local authority social care services across East and West Sussex and Brighton and Hove.

Purpose of the Study:

  • To present a comprehensive data resource profile of the Sussex Integrated Dataset (SID).
  • To highlight the dataset's scope, data sources, and unique population characteristics.
  • To inform potential users about the availability and utility of SID for research and innovation.

Main Methods:

  • Linking routinely collected data from diverse NHS providers (hospitals, general practitioners, community and mental health trusts, ambulance services) and local authority social care services.
  • Implementing rigorous data quality monitoring and harmonizing demographic information into a "demographic milestones" table.
  • Utilizing a "semantic layer" to curate patient cohorts with common long-term conditions.

Main Results:

  • SID provides a rich, linked dataset covering approximately 1.7 million patients, with data generally available from 2017 (GP data up to 20 years).
  • The dataset captures comprehensive health and social care information, including unique demographic and clinical characteristics of the Sussex population.
  • Data quality is actively managed, ensuring a reliable resource for analysis.

Conclusions:

  • The Sussex Integrated Dataset (SID) represents a significant, high-quality linked data resource for public health, service evaluation, and research.
  • SID's unique population characteristics and comprehensive data coverage offer valuable opportunities for health research and innovation.
  • Access to SID through the NHS Secure Data Environment Network facilitates wider utilization for improving health and social care outcomes.