Community Model for Education and Engagement of Black Women About Uterine Fibroids

Uterine fibroids (UF) affect up to 80% of women of reproductive age, with Black women experiencing disproportionate rates and symptom severity. Despite significant UF prevalence, Black women face delayed diagnosis and treatment due to lack of awareness, menstrual stigma, and healthcare distrust. This two-phase, mixed-methods study developed and evaluated a patient-centered, community-based UF education intervention to address these challenges. In Phase 1, focus groups with Black women identified gaps in UF knowledge, preferences for educational delivery, and trust-related communication barriers with healthcare providers. Findings informed the design of educational sessions implemented in Phase 2 across community venues in a large midwestern city, engaging 110 participants. Post-session evaluations revealed significant improvements in participants' confidence in UF knowledge, with satisfaction rates exceeding 90%. This study underscores the value of community-based education facilitated by trusted Black female healthcare providers. This model demonstrates feasibility and potential for addressing other health issues that disproportionately impact Black women by integrating patient perspectives and leveraging community-based settings for health education.