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The Terminal Diner: Serving up a Novel Knowledge Exchange Methodology via Participatory Design Installation
Aria Wills1, Kate Wilkes2, Karen Oikonen3
1Bruyère Health Research Institute, Ottawa, Ontario, Canada.
Summary
This study introduces a novel feedback loop methodology for health services research, enhancing public engagement and co-creation. The Terminal Diner installation effectively shared findings and gathered insights on end-of-life care, informing future research.
Area of Science:
- Health services research
- Arts-based knowledge mobilization (ABKM)
- Participatory research methodologies
Background:
- Arts-based knowledge mobilization (ABKM) facilitates interpretation and communication of health services research through co-creation.
- A novel bidirectional research-to-public-to-research feedback loop methodology was developed, extending existing ABKM practices.
- This approach generates rich, contextually grounded knowledge inaccessible through conventional research methods.
Purpose of the Study:
- To present a case study on the first application of the bidirectional feedback loop methodology.
- To advance and refine the methodological framework by sharing quantitative findings and eliciting public engagement.
- To leverage public engagement to inform subsequent qualitative research.
Main Methods:
- A participatory design installation, 'The Terminal Diner,' focused on end-of-life care was developed using the feedback loop.
- A mixed-methods sequential study design incorporated design and health services methods.
- Methods included developing design principles, selecting installation concepts, prototyping, refining designs, and analyzing installation outputs.
Main Results:
- The Terminal Diner installation invited participants to 'order' desired end-of-life care experiences or share lived experiences.
- Quantitative findings were disseminated, engaging the public in contemplating and co-creating around end-of-life care.
- Installation outputs informed subsequent qualitative research, and interested individuals were recruited as research participants.
Conclusions:
- The study presents an innovative extension of previous research-to-public methodologies, marking a shift towards creative knowledge exchange.
- The methodology fosters bidirectional meaning-making within health services research.
- Patient and public contributions are foundational to co-creating meaningful, responsive, and inclusive health services research.
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