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Updated: Jun 25, 2026

The Rigid Tube as an Alternative in Controlling the Problematic Airway
Published on: June 6, 2020
Surgical management of the airway in Jarcho-Levin syndrome: a case series
Madelyn Zapata-Valentin1, Patricia Mulero Soto1, Luis Martinez Nater1
1St. Luke's Episcopal Medical Center, Ponce, Puerto Rico.
Abstract:
Jarcho-Levin syndrome (JLS) is a rare genetic disorder characterized by vertebral and rib malformations, with respiratory complications being a leading cause of morbidity and mortality. Tracheostomy in patients with JLS can be technically challenging due to underlying anatomical abnormalities. We report two cases of JLS in which tracheostomy tube placement was required. In both cases, anatomical deformities presented significant technical challenges during the procedure. Based on our limited experience, we recommend specific surgical considerations for performing tracheostomy in patients with JLS. Furthermore, early tracheostomy should be considered in patients with JLS prior to the development of recurrent pneumonia and pulmonary hypertension. Currently, no standardized guidelines exist regarding the optimal timing of tracheostomy in JLS.
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