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Amplifying Patient and Caregiver Voices in Academic Conferences: Reflections From a Conference on Integrated Care
Natasha Y Sheikhan1, Terrence Ho2, Philiz Goh3
1Natasha Y. Sheikhan is the patient vice-chair of the Mid-West Toronto Ontario Health Team and chair of its Patient and Caregiver Advisory Council. She is also completing a postdoctoral fellowship at the Centre for Addiction and Mental Health, Toronto, ON. Her work and advocacy focus on amplifying patient and caregiver voice in health research and health system planning.
None:
Academic and healthcare conferences often default to professional expertise, leaving patients and caregivers at the margins. In this commentary led by patient and caregiver partners, we reflect on our experiences co-designing and participating in the 2024 North American Conference on Integrated Care (NACIC24). From waived registration fees and quiet rooms to shared chairing and plenary roles, we highlight tangible steps to creating inclusive conference design processes, spaces and experiences. In reflecting on the successes and areas for additional opportunities, this article provides tangible recommendations to advance patient and caregiver inclusive engagement based on our key learnings from the NACIC24.
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