Related Experiment Video
Updated: Jun 26, 2026
11:35
The Multiple Sclerosis Performance Test (MSPT): An iPad-Based Disability Assessment Tool
Published on: June 30, 2014
Adaptation of the Transition Readiness Assessment Questionnaire for Pediatric-Onset Multiple Sclerosis: Protocol for
Claudia Gambrah-Lyles1, Aaron W Abrams2, Sara Loud3
1Department of Neurology, School of Medicine, Washington University in St. Louis, 1 Children's Place, St. Louis, MO, 63110, United States, 1 314 471 2986.
JMIR Research Protocols
|June 24, 2026
Summary
This study adapts a transition readiness tool for youth with pediatric-onset multiple sclerosis (POMS), addressing unique challenges for better lifelong care. The adapted measure will improve transition planning for POMS patients.
Area of Science:
- Neurology
- Implementation Science
- Patient Transition Care
Background:
- Pediatric-onset multiple sclerosis (POMS) requires lifelong management and a coordinated transition from pediatric to adult care.
- Current transition readiness assessments lack POMS-specific considerations like fluctuating disability and cognitive issues.
- A tailored transition readiness measure is needed for POMS patients.
Purpose of the Study:
- To describe a protocol for adapting the Transition Readiness Assessment Questionnaire (TRAQ) version 6.0 for youth with POMS.
- To incorporate stakeholder input and implementation science principles.
- To address the unique developmental and clinical needs of POMS patients.
Main Methods:
- Utilizing adaptation and participatory research strategies.
- Administering surveys to patients, caregivers, and clinicians to identify transition barriers and self-management competencies.
- Refining competencies via Delphi consensus and assessing the adapted measure through cognitive interviewing and focus groups.
Main Results:
- A consensus-driven set of POMS-specific transition competencies will be generated.
- The TRAQ 6.0 will be systematically adapted for the POMS population.
- Data collection is ongoing, with results anticipated in 2027.
Conclusions:
- This protocol offers a rigorous approach to adapting a transition readiness measure for POMS.
- The adapted TRAQ 6.0 will enhance evidence-based transition planning for POMS patients.
- This work will inform future research to improve care for aging POMS patients.
