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Clinical Practice Protocol of Creative Music Therapy for Preterm Infants and Their Parents in the Neonatal Intensive Care Unit
Published on: January 7, 2020
[Interface management in perinatal palliative medicine - Multiprofessional perinatal palliative care consultation and
Mario Lange1, Evelyn Huhn2, Annika Bronsema3
1Universitätsklinikum Hamburg-Eppendorf, Zentrum für Geburtshilfe, Kinder- und Jugendmedizin, Klinik für Kinder- und Jugendmedizin, Sektion Neonatologie und Pädiatrische Intensivmedizin, Germany, Hamburg.
Insights
Perinatal palliative care for infants with life-limiting conditions requires an integrated approach. Formalizing procedures across prenatal, delivery, and postnatal periods enhances parental satisfaction despite prognostic uncertainty.
Area of Science:
- Perinatology
- Palliative Care
- Neonatal Medicine
Abstract:
Perinatal palliative care represents an interdisciplinary and multiprofessional interface within the care context of perinatology. The three distinct patient groups are: extremely premature infants at the limit of viability, infants prenatally diagnosed life-limiting conditions, and acutely and severely ill newborns. This paper presents the approach for prenatally diagnosed life-limiting conditions at a university Level 1 perinatal care center and contextualizes it within the existing literature. Central challenges include: the uncertainty of prognosis, integration into existing care structures, personnel and time resources, communication with expectant parents, and the process of shared decision-making concerning therapy goals. Summary: An early, integrative and collaborative care approach by developing and formalizing written procedures for the prenatal, delivery, and postnatal periods results in high parental satisfaction. The uncertainty of the prognosis must often be continuously taken into account.
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